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Database Gives Patients Increased Control

HEALTHCARE PRIVACY—U.S.

March 15, 2013

Mashable reports on a new site aiming to recruit patients for clinical trials and disease research “by giving them unprecedented privacy controls and greater say in how their data is used for research.” Many DNA databases require participants to sign broad consent forms, often relinquishing control of how the data will be used. The Genetic Alliance database is the result of a partnership with Private Access, a company that “develops platforms for sharing health information while maintaining privacy,” the report states.
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