Privacy Research    Healthcare/Pharma

A Middleware Approach for Managing Privacy of Outsourced Personal Data

Written by Sharad Mehrotra and Bijit Hore of the Department of Computer Science at the University of California, Irvine, this paper promotes third-party based middleware that sits between clients and service providers and manages tasks related to enabling confidentiality of sensitive information.

Information Lifecycle Management Concepts, Practices and Value

Written by James E. Short of the University of California, San Diego, this report summarizes findings from a year-long study undertaken to explore the views of senior technology managers in addressing information lifecycle management.

Accountability: A Compendium for Stakeholders

Created by The Hunton & Williams Center for Information Policy Leadership, this paper outlines the work of the Accountability Project. It covers the essential elements of accountability, demonstrating and measuring accountability and implementing accountability in the marketplace.

A Privacy Impact Assessment Framework for data protection and privacy rights

Created by the PIAF consortium to the European Commission, this report reviews the privacy impact assessment (PIA) methodologies of seven countries and 10 PIA case studies.

Mobile Phones and Privacy

Created by Jennifer M. Urban and Chris Jay Hoofnagle of the Berkeley Center for Law & Technology at the UC-Berkeley School of Law, this study aims to better understand Americans’ attitudes towards privacy in data generated by or stored on mobile phones and inform the public policy debate concerning the collection and use of information by private and public actors.

Information Security & Data Breach Report—June 2012 Update

Created by Navigant, this report is designed to keep the legal community apprised of data breach activity, spotlight notable breaches, and identify trends and other major changes taking place in the information security arena.

Cyber/Privacy Insurance Market Survey –2012

Created by Betterley Risk Consultants, this survey reviews and evaluates insurance products designed to protect against data security risks for organizations.

2012 Data Breach Investigations Report

A study conducted by the Verizon RISK Team with cooperation from the Australian Federal Police, Dutch National High Tech Crime Unit, Irish Reporting and Information Security Service, Police Central e-Crime Unit, and United States Secret Service.

Exploring the Meaning of “Real Risk of Significant Harm”

This report by Heenan Blakie compiles the results of the AccessPrivacy CPO Forum Workshops held on September 27 and October 12, 2011, Exploring the Meaning of the “Real Risk of Significant Harm” breach notification threshold under the Personal Information Protection Act (Alberta).

Empirical Analysis of Data Breach Litigation

By Sasha Romanosky, David A. Hoffman and Alessandro Acquisti

An Evaluation of Privacy Impact Assessment Guidance Documents

Written by Roger Clarke for International Data Privacy Law

2012 IAPP Privacy Professionals Role, Function and Salary Survey

The 2012 IAPP Privacy Professionals Role, Function and Salary Survey builds upon last year’s survey to provide expanded analysis of key trends as reported by respondents from multiple disciplines within the privacy field. As with previous editions, this survey highlights information and potential trends with regard to the responsibilities, department structures, reporting relationships and compensation levels of privacy professionals from across the globe.

2011 iappANZ Privacy Professionals Role, Function and Salary Survey

The inaugural iappANZ Privacy Professionals Role, Function and Salary Survey is presented by the International Association of Privacy Professionals and iappANZ as an analysis of the work of privacy and data protection professionals in Australia, New Zealand and the Asia-Pacific region. This report highlights the privacy expertise within this region and provides information to help privacy professionals enhance their ongoing career development in the data protection field.

To serve and protect? Electronic health records pose challenges for privacy, autonomy and person-cen

Originally published inThe Journal of Person Centered Medicine, this paper explores healthcare providers’ notification practices under the current law requiring them to notify patients of their privacy rights and the efficiency of current means of monitoring privacy. Highlighting the potential for increased challenges to privacy with the implementation of electronic health records, the paper proposes full transparency in record usage so patients can monitor and control access to their records.

Data Privacy and Trust in the Mobile World

Using findings from the Digital Trust Initiative, presented at the 2011 IAPP executive forum—Navigate, this Data Privacy and Trust in the Mobile World whitepaper from Experian offers guidance and best practices for creating mobile applications that build consumer trust.

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