What Happens if Newborns' Entire Genomes are Screened?
GENETIC PRIVACY—U.S.September 6, 2013
NBC News reports on U.S. government funding for studies on what happens if you screen newborns' entire genomes. The aim of the study is to find out if the data results in better healthcare or simply data overload. “We would like to see if genome sequencing can shed light on disorders that we don’t screen for currently,” said National Institute of Child Health and Human Development Director Dr. Alan Guttmacher, adding there are questions involved. “How do we protect the baby’s privacy? Where will the baby’s genome data be stored, and who will have access to it?”