Greetings! (October 2, 2009)
Last month we explored the privacy and trust considerations surrounding virtual health communities, online portals where people post their private medical information in hopes of gaining knowledge and helping others. This month we turn to another online health paradigm that lives or dies by patient trust: electronic medical records (EMRs). President Obama asserts that, by 2014, the health records of all Americans will be stored electronically.
Drive to Digital Records Begs Due Diligence (October 1, 2009)
While making the case for his overhaul of the public healthcare system, President Obama has doted on one of its provisions: that all personal health records should be digitalized and melded into a single standard format within five years. Doing so, he believes, will reduce administrative headaches--one provider won't have to get on the phone with another to access a patient's hard-copy record--and thus bolster the overall quality of care. The medical community largely supports the...
The Common Data Project was created to encourage and enable the disclosure of personal data for public re-use through the creation of a technology and legal framework for anonymized data-sharing. Specifically, we think that means creating a new kind of institution called a datatrust, which is exactly what it sounds like: a trusted place to store and share sensitive, personal data. So why did we spend a lot of time parsing the legalese of some excruciatingly long privacy statements?