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Report: DNA Samples Could ID Donors

GENETIC PRIVACY

March 12, 2013

CSO reports on research indicating it could “be possible for anyone, even if they follow rigorous privacy and anonymity practices, to be identified by DNA data from people they do not even know.” Referencing a paper published in Science, the report discusses a process where DNA donors and their relatives could be identified “even without any demographic or personal information.” While laws barring “research institutes from releasing any demographic information about donors would protect patient privacy,” the report notes they would “eliminate the ability of researchers who have identified markers for a particular disease to also identify the ethnic or cultural background of those who might have it.”
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