European Data Protection Digest

Gov’t Approves Bio Banks, Databases for Research

PERSONAL PRIVACY—SWEDEN

April 6, 2012

Aiming to learn more about prevalent diseases, Sweden's government has approved a unique medical research project that will involve "large-scale population registration and bio-banks," The Swedish Wire reports. LifeGene was launched in 2010 to collect health information from 500,000 individuals to study the effects of various factors on health but was halted by Sweden's Data Inspection Board due to concerns surrounding the size of the database involved. But the government now plans to make constitutional and legislative changes to address such concerns. Sweden's minister for education said the research must be balanced with individual privacy, the report states.
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