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Can Patient Privacy and Medical Research Coexist?

HEALTHCARE PRIVACY—U.S.

March 14, 2012

Medical researcher Kathryn Segesser is interested in studying anorexia and bulimia across centuries to prove the theory that the disorders aren't related to modern cultural norms. But she says her research is being impeded by healthcare privacy laws, reports Philly.com. Segesser isn't alone in her assertion that medical research is hampered by privacy laws such as HIPAA, which is why two researchers at the University of Massachusetts Lowell are using a recent $700,000 National Institutes of Health grant to try and resolve that tension. In this exclusive for The Privacy Advisor, the professors discuss their development of "data-masking technology," which aims to facilitate research while maintaining patient privacy.
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