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Parents Bring Class-Action Against Minnesota

GENETIC PRIVACY—U.S.

January 26, 2012

Plaintiffs in a class-action lawsuit filed against the state of Minnesota, its Department of Health and the health commissioner claim that the state violated its own Genetic Privacy Act by "collecting, storing and disseminating their children's genetic information without informed consent," reports Courthouse News Service. The suit claims that after testing blood samples taken from infants under Minnesota's newborn screening program, the state retained the samples and "disseminated the genetic information and conducted tests and research on the genetic information belonging to numerous other persons in Minnesota" without consent. The Genetic Privacy Act, enacted in 2006, states that genetic information can only be used in ways an individual has consented to, according to the report.
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