European Data Protection Digest

Institutet To Dispute Board's Decision

DATA PROTECTION—SWEDEN

January 6, 2012

The Karolinska Institutet says it will appeal the Data Inspection Board's ruling that it must stop collecting certain data from patients. After auditing the institute's LifeGene project, the board ruled that the ongoing information gathering for the purpose of future research was in breach of the Personal Data Act. The project has compiled information from volunteers about their health and lifestyles. The data board also noted that parliament and the government should review the legislation. Karolinska Institutet President Harriet Wallberg-Henriksson described the decision as "a devastating blow for medical research," adding, "This shows that there are flaws in the law."
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