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What To Ask Before You Give Away Your DNA

GENETIC PRIVACY

August 31, 2010

When it comes to giving samples of your DNA, there are things you need to know. That's according to Marcy Darnovsky, head of the U.S.-based Center for Genetics and Society, who told The Wall Street Journal that while individuals may want to share their DNA to help scientific studies move forward, it must be done in a "responsible way" that does not put privacy at risk. Darnovsky recommends asking who will have access to the data, whether and how it will be anonymized, where it will be stored and how it will be analyzed, the report states. As Darnovsky put it, "once you give someone your genetic information, it doesn't matter if you destroy the sample" since the data will live on. (Registration may be required to access this story.)
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