Canada Dashboard Digest

Advocates Question Newborn DNA Samples

GENETIC PRIVACY

May 21, 2010

A Canadian civil liberties group says parents should be asking questions about the storage of their newborns' DNA, the Calgary Sun reports. The BC Civil Liberties Association recently launched a complaint about newborn metabolic screening in BC, where 800,000 blood samples from newborns' heels are stored after being screened for disorders. The BC Privacy Commission is investigating the practice and at least one parent has filed a lawsuit for invasion of privacy, the report states. Dave Eby, the executive director of the BC Civil Liberties Association, says parents should be asking "how the blood sample cards are used--whether there is access by pharmaceutical companies, medical research or anyone else."
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