Canada Dashboard Digest

Complaint Filed on Storage, Use of Newborns' DNA

GENETIC PRIVACY

May 14, 2010

The BC Civil Liberties Association has helped launch a complaint with the province's privacy commission on behalf of a Vancouver parent who believes that newborn screening procedures that result in the storage of infant blood samples in laboratories across the country are a breach of privacy. The Globe and Mail reports that the complaint, which is the first of its kind in the province, seeks to have all blood sample cards destroyed in cases where parents did not give consent for their storage. Civil libertarians and privacy advocates are raising concerns that parents are not informed that their babies' genetic information will be stored indefinitely and could be used for research purposes, the report states.
Full Story